Volume 4, Issue 3 (7-2019)                   CJHR 2019, 4(3): 76-81 | Back to browse issues page


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Teimouri A, Noori N M. Quality of Life Among Children With Congenital Heart Defect Based on Parents' proxy-report. CJHR 2019; 4 (3) :76-81
URL: http://cjhr.gums.ac.ir/article-1-125-en.html
1- Children and Adolescent Health Research Center, Resistant Tuberculosis Institute, Zahedan University of Medical Sciences and Health Services,Zahedan, IR Iran
2- Children and Adolescent Health Research Center, Resistant Tuberculosis Institute, Zahedan University of Medical Sciences and Health Services,Zahedan, IR Iran , dr_noori_cardio@yahoo.com
Abstract:   (2018 Views)
Background: The aim of this study was to evaluate quality of life among children with congenital heart defect (CHD) and to determine the associated factors based on parents' proxy-reports.
Methods: This cross-sectional study was conducted on 263 children with CHD using inventory of PedsQoL 3.0. The PedsQoL 3.0 scores reported by parents of children. The association between quality of life and patients characteristics were assessed using multivariate linear regression method.
Results: The mean score of total quality of life was 51.6 (SD=9.68). Re-hospitalization cost was high for the majority of families (46.8%). Heart problem scale of quality of life was significantly associated with mothers’ education and age. On treatment scale, only age had significant correlation. Physical appearances, was associated with number of household and type of diseases. Anxiety was significantly associated with age and re-hospitalization status. Cognition correlated with household numbers and age. Total quality of life was significantly associated with income, age and number of household.
Conclusion: The study found some important predictors of quality of life in children with CHD. The results can be used for further educational and supportive programs for these patients.
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Article Type: Original Contributions | Subject: Public Health
Received: 2019/05/13 | Accepted: 2019/05/25 | Published: 2019/07/1

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References
1. Noori N, Teimouri AR, Boryri T, Shafee Shafiee S. Quality of Life in children and adolescents with congenital heart diseases in Zahedan, Iran. Int J Pediatr. 2017;5(1):4193-4208. doi: 10.22038/ijp.2016.8025.
2. Jacobs JP, Wernovsky G, Elliott MJ. Analysis of outcomes for congenital cardiac disease: can we do better? Cardiol Young. 2007;17(Suppl 2):145-158. doi: 10.1017/S1047951107001278. [DOI:10.1017/S1047951107001278]
3. Moons P, van Deyk K, Marquet K, de Bleser L, de Geest S, Budts W. Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: a cluster analytic study. Eur J Cardiovasc Nurs. 2009;8(2):151-157. doi: 10.1016/j.ejcnurse.2008.11.001. [DOI:10.1016/j.ejcnurse.2008.11.001]
4. Moons P, Bovijn L, Budts W, Belmans A, Gewillig M. Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium. Circulation. 2010;122(22):2264-2272. [DOI:10.1161/CIRCULATIONAHA.110.946343]
5. Uzark K, Jones K, Slusher J, Limbers CA, Burwinkle TM, Varni JW. Quality of life in children with heart disease as perceived by children and parents. Pediatrics. 2008;121(5):e1060-7. doi: 10.1542/peds.2006-3778. [DOI:10.1542/peds.2006-3778]
6. Cassedy A, Drotar D, Ittenbach R, Hottinger S, Wray J, Wernovsky G, et al. The impact of socio-economic status on health related quality of life for children and adolescents with heart disease. Health Qual Life Outcomes. 2013;11:99. doi: 10.1186/1477-7525-11-99. [DOI:10.1186/1477-7525-11-99]
7. Olson LM, Lara M, Frintner MP. Measuring health status and quality of life for US children: relationship to race, ethnicity, and income status. Ambulatory Pediatrics. 2004;4(4):377-386. [DOI:10.1367/A03-156.1]
8. Mansour ME, Kotagal U, Rose B, Ho M, Brewer D, Roy-Chaudhury A, et al. Health-related quality of life in urban elementary schoolchildren. Pediatrics. 2003;111(6 Pt 1): 1372-1381. [DOI:10.1542/peds.111.6.1372]
9. Bornstein MH, Bradley RH. Socioeconomic status, parenting, and child development. Mahwah, NJ: Lawrence Erlbaum Associates Publishers; 2003.
10. Daly MC, Duncan GJ, McDonough P, Williams DR. Optimal indicators of socioeconomic status for health research. Am J Public Health. 2002;92(7):1151-1157.doi:10.2105/ajph.92.7.1151. [DOI:10.2105/AJPH.92.7.1151]
11. Coleman JS. Social capital in the creation of human capital. Am J Sociol. 1988;94:S95-S120. [DOI:10.1086/228943]
12. Entwislea DR, Astone NM. Some practical guidelines for measuring youth's race/ethnicity and socioeconomic status. Child Dev. 1994;65(6):1521-1540. doi: 10.2307/1131278. [DOI:10.2307/1131278]
13. Rose M, Köhler K, Köhler F, Sawitzky B, Fliege H, Klapp BF. Determinants of the quality of life of patients with congenital heart disease. Qual Life Res. 2005;14(1):35-43. doi: 10.1007/s11136-004-0611-7. [DOI:10.1007/s11136-004-0611-7]
14. Sand P, Kljajić M, Sunnegårdh J. The reliability of the Pediatric Quality of Life Inventory 3.0 Cardiac Module™ for Swedish children with congenital heart defects. Nordic Psychology. 2013;65(3):210-223. doi: 10.1080/19012276.2013.824204. [DOI:10.1080/19012276.2013.824204]
15. Warschburger P, Landgraf JM, Petermann F, Freidel K. Health-related quality of life in children assessed by their parents: Evaluation of the psychometric properties of the CHQ-PF50 in two German clinical samples. Qual Life Res. 2003;12(3):291-301. [DOI:10.1023/A:1023233308653]
16. Varni JW, Burwinkle TM, Seid M. The PedsQL™ as a pediatric patient-reported outcome: Reliability and validity of the PedsQL™ Measurement Model in 25,000 children. Expert Rev Pharmacoecon Outcomes Res. 2005;5(6):705-719. doi: 10.1586/14737167.5.6.705. [DOI:10.1586/14737167.5.6.705]
17. Daliento L, Mapelli D, Volpe B. Measurement of cognitive outcome and quality of life in congenital heart disease. Heart. 2006;92(4):569-574. doi: 10.1136/hrt.2004.057273. [DOI:10.1136/hrt.2004.057273]
18. Eslami B, Macassa G, Sundin Ö, Khankeh HR, Soares JJ. Quality of life and life satisfaction among adults with and without congenital heart disease in a developing country. Eur J Prev Cardiol. 2015;22(2):169-179. doi: 10.1177/2047487313514017. [DOI:10.1177/2047487313514017]
19. Durmaz T, Özdemir Ö, Özdemir BA, Keleş T, Bayram NA, Bozkurt E. Factors affecting quality of life in patients with coronary heart disease. Turk J Med Sci. 2009;39(3):343-351. doi:10.3906/sag-0901-26.
20. Chen CA, Liao SC, Wang JK, Chang CI, Chiu IS, Chen YS, et al. Quality of life in adults with congenital heart disease: biopsychosocial determinants and sex-related differences. Heart. 2011;97(1):38-43. doi: 10.1136/hrt.2010.200709. [DOI:10.1136/hrt.2010.200709]
21. Vigl M, Niggemeyer E, Hager A, Schwedler G, Kropf S, Bauer U. The importance of socio-demographic factors for the quality of life of adults with congenital heart disease. Qual Life Res. 2011;20(2):169-177. doi: 10.1007/s11136-010-9741-2. [DOI:10.1007/s11136-010-9741-2]
22. Drakouli M, Petsios K, Giannakopoulou M, Patiraki E, Voutoufianaki I, Matziou V. Determinants of quality of life in children and adolescents with CHD: a systematic review. Cardiol Young. 2015;25(6):1027-1036. doi: 10.1017/S1047951115000086. [DOI:10.1017/S1047951115000086]
23. Verrill D, Barton C, Beasley W, Brennan M, Lippard M, King C. Quality of life measures and gender comparisons in North Carolina Cardiac Rehabilitation Programs. J Cardiopulm Rehabil. 2001;21(1):37-46. doi: 10.1097/00008483-200101000-00008. [DOI:10.1097/00008483-200101000-00008]
24. Nousi D, Christou A. Factors affecting the quality of life in children with congenital heart disease. Health Sci J. 2010;4(2).
25. Kowalsky RH, Newburger JW, Rand WM, Castañeda AR. Factors determining access to surgery for children with congenital cardiac disease in Guatemala, Central America. Cardiol Young. 2006;16(4):385-91. [DOI:10.1017/S1047951106000412]
26. Azhar AS, AlShammasi ZH, Higgi RE. The impact of congenital heart diseases on the quality of life of patients and their families in Saudi Arabia: biological, psychological, and social dimensions. Saudi Med J. 2016;37(4):392-402. doi: 10.15537/smj.2016.4.13626. [DOI:10.15537/smj.2016.4.13626]
27. Marino BS, Tomlinson RS, Wernovsky G, Drotar D, Newburger JW, Mahony L, et al. Validation of the pediatric cardiac quality of life inventory. Pediatrics. 2010;126(3):498-508. doi: 10.1542/peds.2009-2973. [DOI:10.1542/peds.2009-2973]
28. Visconti KJ, Saudino KJ, Rappaport LA, Newburger JW, Bellinger DC. Influence of parental stress and social support on the behavioral adjustment of children with transposition of the great arteries. J Dev Behav Pediatr. 2002;23(5):314-321. doi: 10.1097/00004703-200210000-00003. [DOI:10.1097/00004703-200210000-00003]
29. Gupta S, Giuffre R, Crawford S, Waters J. Covert fears, anxiety and depression in congenital heart disease. Cardiol Young. 1998;8(4):491-499. doi: 10.1017/S1047951100007162. [DOI:10.1017/S1047951100007162]
30. Alkan F, Sertcelik T, Sapmaz SY, Eser E, Coskun S. Responses of mothers of children with CHD: quality of life, anxiety and depression, parental attitudes, family functionality. Cardiol Young. 2017;27(9):1748-1754. doi: 10.1017/S1047951117001184. [DOI:10.1017/S1047951117001184]
31. Frasure-Smith N, Lespérance F, Talajic M. Depression and 18-month prognosis after myocardial infarction. Circulation. 1995;91(4):999-1005. doi: 10.1161/01.cir.91.4.999. [DOI:10.1161/01.CIR.91.4.999]
32. Geskey JM, Cyran SE. Managing the morbidity associated with respiratory viral infections in children with congenital heart disease. Int J Pediatr. 2012;2012:646780. doi: 10.1155/2012/646780. doi: 10.1155/2012/646780. [DOI:10.1155/2012/646780]
33. Manlhiot C, Knezevich S, Radojewski E, Cullen-Dean G, Williams WG, Mccrindle BW. Functional health status of adolescents after the Fontan procedure-comparison with their siblings. Can J Cardiol. 2009 Sep;25(9):e294-300. doi: 10.1016/s0828-282x(09)70139-4. [DOI:10.1016/S0828-282X(09)70139-4]

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